Scleroderma

National Organization for Rare Disorders, Inc.

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Important
It is possible that the main title of the report Scleroderma is not the name you expected.

Disorder Subdivisions

  • None

General Discussion

Scleroderma is a rare autoimmune connective tissue disorder characterized by abnormal thickening of the skin. Connective tissue is composed of collagen, which supports and binds other body tissues. There are several types of scleroderma. Some types affect certain, specific parts of the body, while other types can affect the whole body and internal organs (systemic). Scleroderma is also known as progressive systemic sclerosis. The exact cause of scleroderma is unknown.

Supporting Organizations

American Autoimmune & Related Diseases

22100 Gratiot Ave.
Eastpointe, MI 48021
Tel: (586)776-3900
Fax: (586)776-3903
Tel: (800)598-4668
Email: aarda@aarda.org
Website: http://www.aarda.org/

AutoImmunity Community

Website: https://www.facebook.com/autoimmunityforum

European Society for Immunodeficiencies

1-3 rue de Chantepoulet
Geneva, CH 1211
Switzerland
Tel: 410229080484
Fax: 41229069140
Email: esid@kenes.com
Website: http://www.esid.org

Genetic and Rare Diseases (GARD) Information Center

PO Box 8126
Gaithersburg, MD 20898-8126
Tel: (301)251-4925
Fax: (301)251-4911
Tel: (888)205-2311
Website: http://rarediseases.info.nih.gov/GARD/

Global Fibrosis Foundation

Yale Dermatopathology Service
15 York Street, LMP 5031
New Haven, CT 06520-8059
USA
Tel: (727)433-8180
Email: globalfibrosis@gmail.com
Website: http://www.globalfibrosis.com

International Scleroderma Network

7455 France Ave So #266
Edina, MN 55435-4702
Tel: (952)583-5735
Tel: (800)564-7099
Email: isn@sclero.org
Website: http://www.sclero.org

Juvenile Scleroderma Network, Inc.

1204 W. 13th Street
San Pedro, CA 90731
USA
Tel: (310)519-9511
Fax: (310)519-9511
Tel: (866)338-5892
Email: jsdinfo@jsdn.org
Website: http://www.jsdn.org

Lupus Society of Alberta

Suite 200, 1301 - 8 St. SW
Calgary Alberta, T2R 1B7
Canada
Tel: 4032287956
Fax: 4032287853
Tel: 8882429182
Email: lupuslsa@shaw.ca
Website: http://www.lupus.ab.ca

NIH/National Institute of Arthritis and Musculoskeletal and Skin Diseases

Information Clearinghouse
One AMS Circle
Bethesda, MD 20892-3675
USA
Tel: (301)495-4484
Fax: (301)718-6366
Tel: (877)226-4267
Email: NIAMSinfo@mail.nih.gov
Website: http://www.niams.nih.gov/

National Registry for Childhood Onset Scleroderma

University of Pittsburgh
Arthritis Institute
Pittsburgh, PA 15261
USA
Tel: (412)383-8674
Fax: (412)648-9643
Tel: (800)603-8960
Email: jablonj@msx.dept-med.pitt.edu
Website: http://www.scleroderma.org/medical/juvenile_registry.shtm

Scleroderma Foundation

300 Rosewood Drive, Suite 105
Danvers, MA 1923
USA
Tel: (978)463-5843
Fax: (978)463-5809
Tel: (800)722-4673
Email: sfinfo@scleroderma.org
Website: http://www.scleroderma.org

Scleroderma Research Foundation

220 Montgomery Street
Suite 1411
San Francisco, CA 94104
USA
Tel: (415)834-9444
Fax: (415)834-9177
Tel: (800)441-2873
Email: srfcure@sclerodermaresearch.org
Website: http://www.srfcure.org/home

For a Complete Report

This is an abstract of a report from the National Organization for Rare Disorders (NORD). For a full-text version of this report, go to www.rarediseases.org and click on Rare Disease Database under "Rare Disease Information".

The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only.

It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report.

This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.

Last Updated:  12/14/2009
Copyright  2007 National Organization for Rare Disorders, Inc.