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Sudden Unexplained Death in Childhood

National Organization for Rare Disorders, Inc.

Important
It is possible that the main title of the report Sudden Unexplained Death in Childhood is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report.

Synonyms

  • SUDC

Disorder Subdivisions

  • None

General Discussion

Sudden unexplained death in childhood (SUDC) is defined as the sudden death of a child greater than one year of age that remains unexplained after a thorough case investigation, including performance of a complete autopsy, examination of the death scene, and review of the clinical history.

SUDC deaths have occurred at the following sites:

Death at home, history provided: 79%
Crib or bassinet: 54%
Adult bed: 36%

The placed and found positions were as follows:

Placed supine, side, prone*: 10%, 2%, 3%
Found prone: 89%
Found face position: down, side: 10%, 8%
Co-sleeping, sweating when found: 3%, 1%

*applies only to youngest children

Resources

First Candle-SIDS Alliance
2105 Laurel Bush Road
Suite 201
Bel Air, MD 21015
Tel: (443)640-1049
Tel: (800)221-7437
Email: info@firstcandle.org
Internet: http://www.firstcandle.org

National Sudden and Unexpected Infant/Child Death Resource Center
2115 Wisconsin Avenue, NW
Suite 601
Washington, DC 20007
Tel: (202)687-7466
Fax: (202)784-9777
Tel: (866)866-7437
Email: info@sidscenter.org
Internet: http://www.sidscenter.org

NIH/National Institute of Neurological Disorders and Stroke
P.O. Box 5801
Bethesda, MD 20824
Tel: (301)496-5751
Fax: (301)402-2186
Tel: (800)352-9424
TDD: (301)468-5981
Internet: http://www.ninds.nih.gov/

SIDS Educational Services, Inc.
PO Box 2426
Hyattsville, MD 20784-0426
Tel: (301)322-2620
Fax: (301)322-9822
Email: sidses@aol.com
Internet: http://www.sidssurvivalguide.org

NIH/National Institute of Child Health and Human Development
31 Center Dr
Building 31, Room 2A32
MSC2425
Bethesda, MD 20892
Fax: (866)760-5947
Tel: (800)370-2943
TDD: (888)320-6942
Email: NICHDInformationResourceCenter@mail.nih.gov
Internet: http://www.nichd.nih.gov/

Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg, MD 20898-8126
Tel: (301)251-4925
Fax: (301)251-4911
Tel: (888)205-2311
TDD: (888)205-3223
Internet: http://rarediseases.info.nih.gov/GARD/

CJ Foundation for SIDS, Inc.
HUMC: WFAN Pediatric Center
30 Prospect Avenue
Hackensack, NJ 07601
Tel: (551)996-5301
Fax: (551)996-5326
Tel: (888)825-7437
Email: info@cjsids.org
Internet: http://www.cjsids.org

Sudden Unexplained Death In Childhood Program
c/o CJ Foundation for SIDS
The Don Imus WFAN Pediatric Center
30 Prospect Ave.
Hackensack, NJ 07601
Tel: (201)996-5080
Fax: (201)996-5326
Tel: (800)620-7832
Email: info@sudc.org
Internet: http://www.sudc.org

For a Complete Report

This is an abstract of a report from the National Organization for Rare Disorders (NORD). A copy of the complete report can be downloaded free from the NORD website for registered users. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational therapies (if available), and references from medical literature. For a full-text version of this topic, go to www.rarediseases.org and click on Rare Disease Database under "Rare Disease Information".

The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only. NORD recommends that affected individuals seek the advice or counsel of their own personal physicians.

It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report

This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.

For additional information and assistance about rare disorders, please contact the National Organization for Rare Disorders at P.O. Box 1968, Danbury, CT 06813-1968; phone (203) 744-0100; web site www.rarediseases.org or email orphan@rarediseases.org

Last Updated:  4/28/2010
Copyright  2010 National Organization for Rare Disorders, Inc.

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