Benign Essential Blepharospasm

National Organization for Rare Disorders, Inc.

Skip to the navigation

It is possible that the main title of the report Benign Essential Blepharospasm is not the name you expected.

Disorder Subdivisions

  • None

General Discussion

Benign essential blepharospasm (BEB) is a rare neurological disorder in which affected individuals experience involuntary muscle spasms and contractions of the muscles around the eyes. These spasms come and go (intermittent). Symptoms may begin as eye twitching, blinking and/or irritation. Eventually, BEB causes involuntary closure of the eyes. The exact cause of BEB is unknown. The disorder is one of a group of disorders collectively known as dystonia.

Dystonia is a group of movement disorders that vary in their symptoms, causes, progression, and treatments. This group of neurological conditions is generally characterized by involuntary muscle contractions that force the body into abnormal, sometimes painful, movements and positions (postures).

Supporting Organizations

American Dystonia Society

17 Suffolk Lane
Suite 1
Princeton Junction, NJ 08550
Tel: 310-237-5478
Fax: 609-275-5663

Benign Essential Blepharospasm Canadian Research Foundation, Inc.

62 Brampton Rd.
Toronto, Ontario
M9R 3J7
Tel: 9052640708
Tel: 1-866-890-2473

Benign Essential Blepharospasm Research Foundation, Inc.

PO Box 12468
Beaumont, TX 77726-2468
Tel: (409)832-0788
Fax: (409)832-0890

Dystonia Medical Research Foundation

1 East Wacker Drive, Suite 2810 East Wacker Drive
Suite 2810
Chicago, IL 60601-1905
United States
Tel: (312)755-0198
Fax: (312)803-0138
Tel: (800)377-3978

Dystonia Society

89 Albert Embankment, 2nd Floor
London, SE1 7TP
United Kingdom
Tel: 8454586211
Fax: 8454586311
Tel: 8454586322

Genetic and Rare Diseases (GARD) Information Center

PO Box 8126
Gaithersburg, MD 20898-8126
Tel: (301)251-4925
Fax: (301)251-4911
Tel: (888)205-2311

NIH/National Institute of Neurological Disorders and Stroke

P.O. Box 5801
Bethesda, MD 20824
Tel: (301)496-5751
Fax: (301)402-2186
Tel: (800)352-9424

For a Complete Report

This is an abstract of a report from the National Organization for Rare Disorders (NORD). For a full-text version of this report, go to and click on Rare Disease Database under "Rare Disease Information".

The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only.

It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report.

This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.

Last Updated:  2/7/2013
Copyright  2013 National Organization for Rare Disorders, Inc.