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Sudden Infant Death Syndrome

National Organization for Rare Disorders, Inc.

Important
It is possible that the main title of the report Sudden Infant Death Syndrome is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report.

Synonyms

  • SIDS
  • cot death
  • crib death

Disorder Subdivisions

  • None

General Discussion

Sudden infant death syndrome (SIDS) is the sudden death of an infant under the age of 1 year that remains unexplained after careful review of the history, death scene investigation, and thorough autopsy. In 2008, the most recent published data from the National Vital Statistics System indicated that SIDS was listed as the third leading cause of death in infants in the United States. Causes of SIDS are considered to be multifactorial. The triple risk hypothesis describes the presence of three risk factors that, when overlapping, predispose a baby to SIDS. These include an environmental trigger/stress, a critical developmental period, and an underlying vulnerability. Physician-scientists and scientists are studying neuropathological tissue and genetic material from SIDS victims to ascertain factors that might be responsible for heightening an infant's vulnerability to SIDS. Others are performing physiologic studies on infants known to have an increased risk for SIDS. Basic scientists are studying animal models that might provide insight into mechanisms responsible for SIDS. Current clinical management targets improving education for families and caregivers regarding known modifiable environmental stressors (risk factors) (see below).

Resources

First Candle-SIDS Alliance
2105 Laurel Bush Road
Suite 201
Bel Air, MD 21015
Tel: (443)640-1049
Tel: (800)221-7437
Email: info@firstcandle.org
Internet: http://www.firstcandle.org

National Sudden and Unexpected Infant/Child Death Resource Center
2115 Wisconsin Avenue, NW
Suite 601
Washington, DC 20007
Tel: (202)687-7466
Fax: (202)784-9777
Tel: (866)866-7437
Email: info@sidscenter.org
Internet: http://www.sidscenter.org

NIH/National Institute of Neurological Disorders and Stroke
P.O. Box 5801
Bethesda, MD 20824
Tel: (301)496-5751
Fax: (301)402-2186
Tel: (800)352-9424
TDD: (301)468-5981
Internet: http://www.ninds.nih.gov/

American SIDS Institute
528 Raven Way
Naples, FL 34110
USA
Tel: (239)431-5425
Fax: (239)431-5536
Tel: (800)232-7437
Email: prevent@sids.org
Internet: http://www.sids.org

SIDS Educational Services, Inc.
PO Box 2426
Hyattsville, MD 20784-0426
Tel: (301)322-2620
Fax: (301)322-9822
Email: sidses@aol.com
Internet: http://www.sidssurvivalguide.org

NIH/National Institute of Child Health and Human Development
31 Center Dr
Building 31, Room 2A32
MSC2425
Bethesda, MD 20892
Fax: (866)760-5947
Tel: (800)370-2943
TDD: (888)320-6942
Email: NICHDInformationResourceCenter@mail.nih.gov
Internet: http://www.nichd.nih.gov/

Foundation for the Study of Infant Deaths
11 Belgrave Road
London, SW1V 1RB
United Kingdom
Tel: 02078023200
Fax: 08707870725
Tel: 08707870554
Email: helpline@fsid.org.uk
Internet: http://fsid.org.uk/Page.aspx?pid=191

Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg, MD 20898-8126
Tel: (301)251-4925
Fax: (301)251-4911
Tel: (888)205-2311
TDD: (888)205-3223
Internet: http://rarediseases.info.nih.gov/GARD/

Infants Remembered In Silence, Inc. (IRIS)
112 Third Street NE
Faribault, MN 55021
Tel: (507)334-4748
Fax: (507)334-4748
Email: support@irisremembers.com
Internet: http://www.irisRemembers.com

Share Pregnancy & Infant Loss Support, Inc.
402 Jackson Street
Saint Charles, MO 63301
Tel: (636)947-6164
Fax: (636)947-7486
Tel: (800)821-6819
Email: info@nationalshare.org
Internet: http://www.nationalshare.org

Sudden Infant Death Services of Illinois, Inc.
6010 Route 53
Suite A
Lisle, IL 60532
Tel: (630)305-7300
Fax: (630)305-4773
Tel: (800)432-7437
Email: pam@sidsillinois.org
Internet: http://www.sidsillinois.org

CJ Foundation for SIDS, Inc.
HUMC: WFAN Pediatric Center
30 Prospect Avenue
Hackensack, NJ 07601
Tel: (551)996-5301
Fax: (551)996-5326
Tel: (888)825-7437
Email: info@cjsids.org
Internet: http://www.cjsids.org

For a Complete Report

This is an abstract of a report from the National Organization for Rare Disorders (NORD). A copy of the complete report can be downloaded free from the NORD website for registered users. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational therapies (if available), and references from medical literature. For a full-text version of this topic, go to www.rarediseases.org and click on Rare Disease Database under "Rare Disease Information".

The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only. NORD recommends that affected individuals seek the advice or counsel of their own personal physicians.

It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report

This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.

For additional information and assistance about rare disorders, please contact the National Organization for Rare Disorders at P.O. Box 1968, Danbury, CT 06813-1968; phone (203) 744-0100; web site www.rarediseases.org or email orphan@rarediseases.org

Last Updated:  7/11/2012
Copyright  1986, 1987, 1991, 1998, 1999, 2007, 2009, 2012 National Organization for Rare Disorders, Inc.

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