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Idiopathic Neonatal Hepatitis

National Organization for Rare Disorders, Inc.

Important
It is possible that the main title of the report Idiopathic Neonatal Hepatitis is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report.

Synonyms

  • INH
  • neonatal giant cell hepatitis
  • idiopathic neonatal hepatitis syndrome

Disorder Subdivisions

  • None

General Discussion

Neonatal hepatitis is a general term for inflammation of the liver (hepatitis) that occurs shortly after birth. Neonatal hepatitis may be caused by viruses, certain metabolic or genetic disorders, and other rare diseases that affect or impair the function of the liver. In some children, the cause of liver inflammation is unknown - these cases are referred to as idiopathic neonatal hepatitis (INH). The symptoms of idiopathic neonatal hepatitis may vary greatly from one individual to another. Symptoms common to liver disease often occur including yellowing of the whites of the eyes and the skin (jaundice), enlargement of the liver (hepatomegaly) and unusually dark urine. Most individuals with idiopathic neonatal hepatitis fully recover from the condition; however, some will progress to chronic liver disease.

Resources

March of Dimes Birth Defects Foundation
1275 Mamaroneck Avenue
White Plains, NY 10605
Tel: (914)997-4488
Fax: (914)997-4763
Tel: (888)663-4637
Email: Askus@marchofdimes.com
Internet: http://www.marchofdimes.com

American Liver Foundation
39 Broadway, Suite 2700
New York, NY 10006
USA
Fax: (212)483-8179
Tel: (800)465-4837
Email: http://www.liverfoundation.org/contact/
Internet: http://www.liverfoundation.org

NIH/National Institute of Diabetes, Digestive & Kidney Diseases
Office of Communications & Public Liaison
Bldg 31, Rm 9A06
31 Center Drive, MSC 2560
Bethesda, MD 20892-2560
Tel: (301)496-3583
Email: NDDIC@info.niddk.nih.gov
Internet: http://www2.niddk.nih.gov/

Children's Liver Disease Foundation
36 Great Charles Street
Birmingham, B3 3JY
United Kingdom
Tel: 01212123839
Fax: 01212124300
Email: info@childliverdisease.org
Internet: http://www.childliverdisease.org

Canadian Liver Foundation
3100 Steeles Avenue East Suite 801
Markham Ontario, L3R 8T3
Canada
Tel: 4164913353
Fax: 9057521540
Tel: 8005635483
Email: clf@liver.ca
Internet: http://www.liver.ca

Hepatitis Foundation International
504 Blick Drive
Silver Spring, MD 20904
Tel: (301)622-4200
Fax: (301)622-4702
Tel: (800)891-0707
Email: hfi@comcast.net
Internet: http://www.hepatitisfoundation.org

British Liver Trust
2 Southampton Road
Ringwood, BH24 1HY
United Kingdom
Tel: 01425481320
Fax: 01425481335
Tel: 08006527330
Email: info@britishlivertrust.org.uk
Internet: http://www.britishlivertrust.org.uk

Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg, MD 20898-8126
Tel: (301)251-4925
Fax: (301)251-4911
Tel: (888)205-2311
TDD: (888)205-3223
Internet: http://rarediseases.info.nih.gov/GARD/

Madisons Foundation
PO Box 241956
Los Angeles, CA 90024
Tel: (310)264-0826
Fax: (310)264-4766
Email: getinfo@madisonsfoundation.org
Internet: http://www.madisonsfoundation.org

CORE
3 St. Andrews Place
London, NW1 4LB
United Kingdom
Tel: 02074860341
Fax: 02072242012
Email: info@corecharity.org.uk
Internet: http://www.corecharity.org.uk

Childhood Liver Disease Research and Education Network
c/o Joan M. Hines, Research Administrator
Children's Hospital Colorado
13123 E 16th Ave. B290
Aurora, CO 80045
Tel: (720)777-2598
Fax: (720)777-7351
Email: joan.hines@childrenscolorado.org
Internet: http://www.childrennetwork.org

For a Complete Report

This is an abstract of a report from the National Organization for Rare Disorders (NORD). A copy of the complete report can be downloaded free from the NORD website for registered users. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational therapies (if available), and references from medical literature. For a full-text version of this topic, go to www.rarediseases.org and click on Rare Disease Database under "Rare Disease Information".

The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only. NORD recommends that affected individuals seek the advice or counsel of their own personal physicians.

It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report

This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.

For additional information and assistance about rare disorders, please contact the National Organization for Rare Disorders at P.O. Box 1968, Danbury, CT 06813-1968; phone (203) 744-0100; web site www.rarediseases.org or email orphan@rarediseases.org

Last Updated:  12/14/2011
Copyright  1986, 1990, 1994, 1995, 2003, 2008, 2011 National Organization for Rare Disorders, Inc.

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