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Macular Degeneration

National Organization for Rare Disorders, Inc.

Important
It is possible that the main title of the report Macular Degeneration is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report.

Synonyms

  • Foveal Dystrophy, Progressive
  • Macula Lutea, degeneration
  • Macular Dystrophy
  • Tapetoretinal Degeneration

Disorder Subdivisions

  • Behr 1
  • Behr 2
  • Adult Macula Lutea Retinae Degeneration
  • Presenile Macula Lutea Retinae Degeneration
  • Stargardt's Disease (STGD)
  • Juvenile Macular Degeneration
  • Macular Degeneration, Senile
  • Macular Degeneration, Disciform

General Discussion

Macular degeneration is a degenerative disease affecting the macula or center of the retina of the eye. It results in progressive loss of central vision. Occurring most often among older people, it is the most common cause of vision loss in people over age 55. It is believed that both genetic and environmental factors influence this disease.

Resources

Lighthouse International
111 E 59th St
New York, NY 10022-1202
Tel: (800)829-0500
Email: info@lighthouse.org
Internet: http://www.lighthouse.org

American Foundation for the Blind
2 Penn Plaza
Suite 1102
New York, NY 10121
Tel: (212)502-7600
Fax: (888)545-8331
Tel: (800)232-5463
TDD: (212)502-7662
Email: afbinfo@afb.net
Internet: http://www.afb.org

American Council of the Blind
2200 Wilson Boulevard
Suite 650
Arlington, VA 22201
Tel: (202)467-5081
Fax: (202)465-5085
Tel: (800)424-8666
Email: mailman@acb.org
Internet: http://www.acb.org/

Association for Macular Diseases, Inc.
210 E. 64th St.
8th Floor
New York, NY 10065
Tel: (212)605-3719
Fax: (212)605-3795
Email: association@retinal-research.org
Internet: http://www.macula.org/association/about.html

NIH/National Eye Institute
31 Center Dr
MSC 2510
Bethesda, MD 20892-2510
United States
Tel: (301)496-5248
Fax: (301)402-1065
Email: 2020@nei.nih.gov
Internet: http://www.nei.nih.gov/

American Health Assistance Foundation
22512 Gateway Center Drive
Clarksburg, MD 20871
USA
Fax: (301)948-4403
Tel: (800)437-2423
Email: info@ahaf.org
Internet: http://www.ahaf.org

Eye Cancer Foundation
115 East 61st Street, Suite 5B
New York, NY 10021
Tel: (212)832-7297
Fax: (212)888-4030
Email: contactus@eyecarefoundation.org
Internet: http://eyecancerfoundation.net/index.htm

MUMS National Parent-to-Parent Network
150 Custer Court
Green Bay, WI 54301-1243
USA
Tel: (920)336-5333
Fax: (920)339-0995
Tel: (877)336-5333
Email: mums@netnet.net
Internet: http://www.netnet.net/mums/

MD Support - The Eyes of the Macular Degeneration Community
3600 Blue Ridge Blvd
Grandview, MO 64030
USA
Tel: (816)761-7080
Fax: (816)761-7080
Email: director@mdsupport.org
Internet: http://www.mdsupport.org

Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg, MD 20898-8126
Tel: (301)251-4925
Fax: (301)251-4911
Tel: (888)205-2311
TDD: (888)205-3223
Internet: http://rarediseases.info.nih.gov/GARD/

Foundation Fighting Blindness (Canada)
890 Yonge Street, 12th Floor
Toronto, Ontario, M4W 3P4
Canada
Tel: 416-360-4200
Fax: 416-360-0060
Tel: 800-461-3331
Email: info@ffb.ca
Internet: http://www.ffb.ca

Macular Disease Society
PO Box 1870
Andover, SP10 9AD
UK
Tel: 01264 350551
Fax: 01264 350558
Email: info@maculardisease.org
Internet: http://www.maculardisease.org/

Retina International
Ausstellungsstrasse 36
CH-8005
Zürich,
Switzerland
Tel: + 41 (0) 44 444 10 77
Fax: + 41 (0) 44 444 10 70
Email: christina.fasser@retina-international.org
Internet: http://www.retina-international.org

For a Complete Report

This is an abstract of a report from the National Organization for Rare Disorders (NORD). A copy of the complete report can be downloaded free from the NORD website for registered users. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational therapies (if available), and references from medical literature. For a full-text version of this topic, go to www.rarediseases.org and click on Rare Disease Database under "Rare Disease Information".

The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only. NORD recommends that affected individuals seek the advice or counsel of their own personal physicians.

It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report

This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.

For additional information and assistance about rare disorders, please contact the National Organization for Rare Disorders at P.O. Box 1968, Danbury, CT 06813-1968; phone (203) 744-0100; web site www.rarediseases.org or email orphan@rarediseases.org

Last Updated:  5/7/2008
Copyright  1986, 1987, 1990, 1996, 1997, 1998, 1999, 2000, 2004 National Organization for Rare Disorders, Inc.

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