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Multiple Hereditary Exostoses

Self Help Clearinghouse

This information is provided as a resource and does not constitute an endorsement for any group. It is the responsibility of the reader to decide whether a group is appropriate for his/her needs. For evidence-based information on diseases, conditions, symptoms, treatment and wellness issues, continue searching this site.

MHE and Me: A Support Group for Kids with MHE

(member of The MHE Coalition) National. Founded 1999. Provides peers and a supportive community to children suffering from multiple hereditary exostoses (a genetic disorder in which benign cartilage-capped bone tumors grow from growth plates of long bones or on the surface of flat bones). Develops information and literature to assist children and their families in dealing with the disease. Offers free Bumpy Bone Club membership to patients and their siblings. Provides We Care packages to children having surgery and their siblings. Advocacy, information and referrals, phone and e-mail support.
Write:
MHE and Me
P.O. Box 651
Pine Island, NY 10969
Voice: 845-258-6058
Website: http://www.mheandme.com
E-mail: mheandme@yahoo.com
Verified: 9/13/2013

The MHE Coalition

National. 3 affiliated groups. Founded 2000. Support and information for persons and their families affected by multiple hereditary exostoses, a skeletal disorder characterized by the formation of abnormal bony growths. Promotes and encourages research to find the cause, treatment and cure. Newsletter, networking, literature, advocacy, online chat, information and referrals, phone support and pen pals.
Write:
MHE Coalition
6783 York Road, #104
Parma Heights, OH 44130-4596
Voice: 440-842-8817 or 440-821-5038
Website: http://www.mhecoalition.org
E-mail: chelez1@yahoo.com
Verified: 9/3/2013

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