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Mitochondrial Disorders

Self Help Clearinghouse

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United Mitochondrial Disease Foundation (UMDF)

National network. 13 chapters. 24 affiliated groups. Founded 1995. Provides support and networking to persons with mitochondrial disease, a genetic degenerative disease, and their families. Promotes research and education for the diagnosis, treatment and cure. Local support groups, quarterly newsletter, information and referrals, library of medical publications, patient registry, phone help and annual symposium. Awards research grants. Help with starting local support groups. Online support available - contact connect@umdf.org for information.
Write:
UMDF
8085 Saltsburg Rd. Ste. 201
Pittsburgh, PA 15239
Voice: 412-793-8077
Fax: 412-793-6477
Website: http://www.umdf.org
E-Mail: info@umdf.org
Verified: 2/18/2014

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