Skip to Content

Menu Icon
Menu
Menu Icon

Vascular Birthmarks

Self Help Clearinghouse

This information is provided as a resource and does not constitute an endorsement for any group. It is the responsibility of the reader to decide whether a group is appropriate for his/her needs. For evidence-based information on diseases, conditions, symptoms, treatment and wellness issues, continue searching this site.

The Sturge-Weber Foundation

International network. Members in 50 states and internationally. Founded 1987. Mutual support network for families and professionals involved with Sturge-Weber syndrome, Port Wine birthmarks or Klippel Trenaunay syndrome. Disseminates information, funds and facilitates research. Newsletter, e-news monthly, phone support, bi-annual conference, pen pals and active e-mail support group. Educational materials for schools, parents and clinicians.
Write:
The Sturge-Weber Foundation
1240 Sussex Turnpike
Randolph, NJ 07869
Voice: 973-895-4445
Fax: 973-895-4846
Website: http://www.sturge-weber.org
E-Mail: ahoward@sturge-weber.org
Verified: 2/27/2014

Vascular Birthmark Foundation

National. Provides support via discussion boards - click on 'FORUMS'; click on RESOURCES then click on Support Groups and then Groups and Foundations. Also has downloadable resources, information and links to other resources.
Write:
VBF
PO Box 106
Latham, NY 12110
Voice: 1-877-823-4646
Website: http://www.birthmark.org
Verified: 3/5/2014

Klippel Trenaunay (KT) Support Group

National. Founded 1986. Provides support and education for individuals with Klippel Trenaunay, a combined vascular malformation, and their families.
Write:
K-T Support
1471 Greystone Lane
Milford, OH 45150
Website: http://k-t.org
Verified: 3/5/2014

AVM Survivors

Online. Provides support, information and network for individuals with Arteriovenous Malformation.
Website: http://www.avmsurvivors.org
E-Mail: info@bensfriends.org
Verified: 9/13/2013

This information does not replace the advice of a doctor. Healthwise, Incorporated disclaims any warranty or liability for your use of this information. Your use of this information means that you agree to the Terms of Use. How this information was developed to help you make better health decisions.

Healthwise, Healthwise for every health decision, and the Healthwise logo are trademarks of Healthwise, Incorporated.

Symptom Checker

Feeling under the weather?

Use our interactive symptom checker to evaluate your symptoms and determine appropriate action or treatment.

Decision Points

Our interactive Decision Points guide you through making key health decisions by combining medical information with your personal information.

You'll find Decision Points to help you answer questions about:

Interactive Tools

Get started learning more about your health!

Our Interactive Tools can help you make smart decisions for a healthier life. You'll find personal calculators and tools for health and fitness, lifestyle checkups, and pregnancy.