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Kidney Disease

Self Help Clearinghouse

This information is provided as a resource and does not constitute an endorsement for any group. It is the responsibility of the reader to decide whether a group is appropriate for his/her needs. For evidence-based information on diseases, conditions, symptoms, treatment and wellness issues, continue searching this site.

American Association of Kidney Patients

National. 82 groups. Founded 1969. Provides information, education and mutual support for kidney patients, their families and friends. Has 82 local community support groups. Membership includes those with reduced kidney function, as well as dialysis and transplant patients. Also provides educational materials, bi-monthly magazine, three electronic newsletters, and an annual patient meeting. If you need to start a new local support group, contact them and ask for their 'Support Group Guidebook' for developing an independent patient support group.
Write:
American Association of Kidney Patients
2701 N. Rocky Point Dr., Suite 150
Tampa, FL 33607
Voice: 1-800-749-2257
Fax: 813-636-8122
Website: http://www.aakp.org
Verified: 2/7/2014

PKD Foundation

International. 55 volunteer Friends chapters. Founded 1982. Funds research and provides emotional support and education for people with polycystic kidney disease and their families. Promotes public awareness. Holds medical seminars and fund-raisers. Newsletters and online educational tools.
Write:
PKR Foundation
8330 Ward Parkway, Ste. 510
Kansas City, MO 64114
Voice: 1-800-753-2873 or 816-931-2600
Fax: 816-931-8655
Website: http://www.pkdcure.org
E-Mail: angelac@pkdcure.org
Verified: 2/27/2014

Barttersite

Online. 1100 members. Founded 2003. Support and information for persons with Bartter and Gitelman's Syndrome, a kidney disorder causing low potassium and magnesium levels. Open to patients, families, friends or interested others.
Website: http://health.groups.yahoo.com/group/barttersyndrome
Verified: 11/6/2013

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