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Xeroderma Pigmentosum

Self Help Clearinghouse

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Xeroderma Pigmentosum Society

International network. Founded 1995. Provides sharing of support, information and coping skills for families affected by xeroderma pigmentosum. Annual newsletter. Promotes research into finding a cure. Information and referrals, phone support, conferences, literature, advocacy in community, education and protection. Camp Sundown for patients of all ages and their families.
Xeroderma Pigmentosum Society
437 Snydertown Rd.
Craryville, NY 12521
Voice: 518-851-3466
Verified: 3/5/2014

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